PROTECTION AGAINST ADVERSE CONSEQUENCES FOR PERSONS WHO RECOVERED FROM ONCOLOGICAL DISEASES (RIGHT TO BE
Table of Provisions (10)
Statutory Text (10 Articles)
FOR PERSONS WHO RECOVERED FROM
ONCOLOGICAL DISEASES (RIGHT TO BE FORGOTTEN)
CHAPTER 657
PROTECTION AGAINST ADVERSE
CONSEQUENCES FOR PERSONS WHO RECOVERED
FROM ONCOLOGICAL DISEASES (RIGHT TO BE
FORGOTTEN) ACT
AN ACT to provide for the Protection against Adverse
Consequences for Persons who recovered from Oncological Diseases
(Right to be Forgotten).
*
ACT X of 2026.
(1)
The short title of this Act is the Protection against
Adverse Consequences for Persons who recovered from Oncological
Diseases (Right to be Forgotten) Act.
(2)
This Act shall come into force on 1st January 2027.
In this Act, unless the context otherwise requires
"Board" means the Review Board established by article
5;
"contract of service" and "contract of employment" shall
have the meaning assigned to them in accordance with article 2
of the Employment and Industrial Relations Act;
"date of diagnosis" means the first day a qualified
medical professional determines a person has an oncological
disease;
"date of end of treatment" means the date of the last
active treatment in accordance with the applicable medical
protocol, and in case of a dispute between the recovered person
and the other party this date may be determined in accordance
with article 7;
"established period" means the period of time which has
elapsed since the date of the end of treatment without relapse;
"financial services agreement" means any life insurance
contract, bank loan agreement, or any other contract or
agreement ancillary thereto;
"medical history" means any medical records relating to
*Not yet in force.
FOR PERSONS WHO RECOVERED FROM ONCOLOGI-
CAL DISEASES (RIGHT TO BE FORGOTTEN)
the diagnosis and treatment of any oncological disease,
including any records which may pre-date the diagnosis if they
refer to the related testing, and also includes any follow-up
medical check-ups, tests, and results following the end of
treatment in so far as they relate to the oncological disease, and
it shall also include any inquiry, request, or disclosure, whether
oral or written, regarding whether a person has ever been
diagnosed with or treated for any oncological disease;
"Minister" means the Minister responsible for health;
"oncological disease" means any disease involving
abnormal growth and spread of cells in the body, commonly
known as cancer;
"other party" means the party offering a financial
services agreement, contract of service or contract of
employment;
"recovered person" or "person who recovered" means a
person who had been diagnosed with an oncological disease
and is in remission following successful treatment;
"relapse" means the recurrence of the oncological
disease following the end of treatment, and shall not include
any other health issues which may arise during the period
following the end of treatment even if emanating as a direct
consequence of the oncological disease.
(1)
For the purposes of entering into any contract of
service, contract of employment or financial services agreement, a
recovered person’s medical history shall not be requested, considered
or used in order to dissuade, impede or refuse access to any contract of
service, contract of employment or financial service, or to impose
more onerous conditions or to affect in any way the content of the
contract of service, contract of employment or financial services
agreement, if an established period of ten (10) years has elapsed since
the date of the end of treatment of the recovered person
Provided that in the case of diagnosis before the age of
twenty five (25) years, the established period shall be shortened to five
(5) years from the end of treatment
Provided further that the Minister, with the concurrence of
the Minister responsible for finance and the Minister responsible for
employment, may by means of regulations prescribe shorter
established periods under such conditions as may be specified and in
such case the shorter established periods and the conditions applicable
FOR PERSONS WHO RECOVERED FROM
ONCOLOGICAL DISEASES (RIGHT TO BE FORGOTTEN)
thereto may be included in a Schedule.
(2)
The medical history referred to in this article may not be
requested or acquired even from sources other than the recovered
person or the other party, and in case it is made known or made
available to the other party, such medical history shall not be considered
or used in order to refuse access to any contract of service, contract of
employment or financial services agreement, or to impose more
onerous conditions or to affect in any way the content of the contract
of service, contract of employment or financial services agreement, if
the established period as established in this Act has elapsed.
(3)
Where when entering into a financial services agreement
subsequent to the coming into force of this Act the established period
has not yet elapsed, the financial services agreement is to specify that
after the relevant established period elapses, consideration of the
medical history of the recovered person may no longer be made and
any clause which affects the content of the financial services
agreement based on the medical history shall no longer have effect
from the date when the established period elapses
Provided that the medical history of the recovered person
held by the other party shall, subsequent to the lapse of the established
period, be anonymised and the recovered person shall be notified in
writing that such anonymisation has taken place.
(4)
Where a financial services agreement exists prior to the
coming into force of this Act and includes a clause which is
incompatible with this Act, and the established period has elapsed or
shall elapse on or after the coming into force of this Act, the respective
clause shall cease to have effect and shall be considered null and void
in accordance with article 4 as from the date on which the established
period has elapsed or from the date of coming into force of this Act,
whichever is the later
Provided that the medical history of the recovered person
which was held by the other party shall, subsequent to the established
period elapsing, be anonymised and the recovered person shall be
notified in writing that such anonymisation has taken place.
(5)
Where medical history of a recovered person was requested
when the person entered into a contract of service or a contract of
employment prior to the coming into force of this Act and the medical
history is still being held by the other party, it shall, subsequent to the
lapse of the established period, be anonymised and the recovered
person shall be notified in writing that such anonymisation has taken
place.
(6)
In all cases mentioned in sub-articles (3) to (5) it shall be the
FOR PERSONS WHO RECOVERED FROM ONCOLOGI-
CAL DISEASES (RIGHT TO BE FORGOTTEN)
responsibility of the recovered person to inform the other party that the
established period has elapsed, and the effect of the aforementioned
sub-articles shall only operate from the date when this information
reaches the other party
Provided that in case of a dispute as to the date of the end of
the treatment any of the parties may refer the matter to the Board in
accordance with article 7.
Where any clause in a contract of service, contract of
employment or financial services agreement breaches any provision of
this Act, the respective clause shall be null and void limitedly to such
breach but such breach shall not nullify the entire contract
Provided that the nullity of such clause shall not operate in
such a way as to deny any rights which the recovered person may have
acquired through the same clause, in which case the clause shall still
have effect only to the said extent.
(1)
There shall be a Review Board having the functions
established in this Act.
(2)
The Review Board shall be composed of a Chairperson and
two (2) members appointed by the Minister. The Chairperson shall be
a person who has practised as an advocate in Malta for a period or
periods amounting, in the aggregate, to not less than seven (7) years,
and the two (2) members shall be medical professionals having
qualifications and experience in the field of oncological diseases
Provided that where in the opinion of the Minister it is not
possible or practical due to particular circumstances for the Board to
be composed as aforesaid, the Minister may appoint members of the
Board as he considers to be suitable for the carrying out of the
functions of the Board in accordance with this Act in the
circumstances
Provided further that the Minister may also appoint
substitute Chairpersons and members if the office of Chairperson or a
member is vacant or if for any reason such Chairperson or member is
unable to perform the functions of his office. The Minister may also
appoint different compositions of the Board.
(3)
The Chairperson and members of the Board shall be
appointed for a period of three (3) years, and shall be eligible for re-
appointment.
(4)
In the exercise of their functions the Chairperson and
members of the Board shall not be subject to the direction or control of
any other person or authority.
FOR PERSONS WHO RECOVERED FROM
ONCOLOGICAL DISEASES (RIGHT TO BE FORGOTTEN)
(5)
The Board may act notwithstanding any vacancy in its
composition.
(6)
The Minister shall appoint a person to act as Secretary to the
Board.
(7)
The Chairperson and Members of the Board may be
removed by the Minister prior to the expiry of their term of office only
on the ground of proven inability to perform the functions of their
office whether arising from infirmity of body or mind or any other
cause, or for proven misbehaviour.
(1)
The Board shall carry out the following functions
(a)
the determination of the date of diagnosis and, or
the date of the end of treatment in accordance with the
procedure established in article 7;
(b)
the recommendation of the review and reduction
of established periods for specific oncological diseases that
shall be included by the Minister in the Schedule, in accordance
with scientific and medical progress and article 3;
(c)
any other such function as may be assigned to it
by the Minister for the proper implementation of this Act.
(2)
Proceedings before the Board shall be held in camera and
shall be confidential.
(3)
The Board shall, in the exercise of its functions, have the
power to take decisions, make recommendations, issue rulings and
refer to the relevant authorities for action, assistance or information.
(4)
The Board shall have the power to access all medical
records held by any public or private health care provider which are
relevant to the requests made to it.
(5)
The Board may, whenever it deems necessary, engage one
(1) or more persons, whom it considers to be in possession of suitable
expertise to assist it in carrying out specific tasks requiring such
expertise, and, for this purpose, the Board may impose such conditions
as it considers necessary.
(6)
The Board shall at the end of each year, or earlier if so
requested, make a report of its activities to the Minister. The said
report shall be laid on the Table of the House by the Minister in a form
which respects the confidentiality of personal data
Provided that the report
may
include
anonymised
information for statistical purposes.
FOR PERSONS WHO RECOVERED FROM ONCOLOGI-
CAL DISEASES (RIGHT TO BE FORGOTTEN)
(1)
In cases to which the provisions of articles 3(3), 3(4),
and 3(5) apply, if a dispute arises as to the date of diagnosis and, or the
date of the end of treatment, either party may submit an application
before the Board for determination of the dispute.
(2)
Without prejudice to the generality of article 6(3), the Board
may request access to any medical history data from the recovered
person, strictly for determination of the date of diagnosis and, or the
date of the end of treatment, sohowever that the other party shall not
have access to such data.
(3)
The determination is to be made expeditiously and without
delay and the Board shall endeavour to make such determination not
later than one week from when the application is made
Provided that if the Board makes a request for data the
above referred time limit may be extended for a period of not more
than one week from the receipt of data.
(4)
In determining the end of treatment, the Board shall not take
into account any treatment, medicine, testing or other health-checkups
which are not specifically administered as part of the direct removal or
eradication of cancer cells or direct treatment of the oncological
disease. For the avoidance of doubt, long-term treatments such as
hormone therapy and maintenance chemotherapy used to prevent
relapse and, or improve prognosis shall not operate to extend the
established period.
(5)
The decisions referred to in this article shall be
communicated in writing solely to the parties and may not be
distributed further.
(6)
The effects of sub-articles 3(3), 3(4) and 3(5) shall operate
(a)
from the date established by the Board if the date
of end of treatment provided by the recovered person in
accordance with article 3(6) is found to be incorrect; or
(b)
retroactively from the date of end of treatment
provided by the recovered person in accordance with article
3(6), if this date is confirmed by the Board.”.
The Minister may make regulations as authorized under this
Act, including Schedules annexed to this Act within the parameters of
article 3, and in general for the better implementation of the provisions
of this Act
Provided that any Schedules which the Minister may make
shall be revised at least once a year.
FOR PERSONS WHO RECOVERED FROM
ONCOLOGICAL DISEASES (RIGHT TO BE FORGOTTEN)
Any person, not being the recovered person, who fails to
abide by the provisions of the Act or fails to comply with any order or
request made by the Board shall be guilty of an offence and shall be
liable, on conviction, to a fine (multa) of not less than five hundred euro
(€500) and not more than five thousand euro (€5,000), as well as a
penalty for each day during which the failure to comply with this Act
subsists, which daily penalty shall not be less than ten euro (€10) and not
more than one hundred euro (€100).